About The DESSH Foundation

The DESSH Foundation Shop was created to raise awareness for DeSanto-Shinawi Syndrome, a rare genetic disease. A portion of your purchase will go directly to our non-profit foundation to support our mission. Happy shopping!

The DESSH Foundation is a 501c3 non-profit organization that aims to support patients and families challenged by DeSanto-Shinawi Syndrome and advance research in pursuit of a cure through awareness and fundraising. Our top priorities are to raise awareness among the medical profession and general public; to advance research and education; and to provide a support-community for families challenged by DeSanto-Shinawi Syndrome. Learn more at www.dessh.org.